COMPLETE:
Exploring primary care physicians’ experiences of language and cultural discordant care for linguistic minority patients at the end-of-life across Ontario.
About
Patient-provider language discordance can have a negative impact on access to health services and quality of care, especially for patients from ethnocultural and linguistic minority groups. In this study, we explored the experiences of family physicians providing language discordant palliative or end-of-life care to older adults across Ontario to understand the impacts of linguistic and cultural discordance in care. We gained insight in 4 key areas: (1) Communication challenges, related to interpretation and health literacy; (2) Care challenges, related to developing care plans and accessing care long-term 3) Cultural navigation, especially during difficult conversations and understanding patient preferences 4) Coping methods using physician resources and skills.
Funding
Le Consortium national de formation en santé Volet, Université d’Ottawa.
Research Team
Project Lead: Krystal Kehoe MacLeod kmacleod@bruyere.org
Research Coordinator: Maya Gibb mgibb@ohri.ca
Research Assistant: Alex Lee slee344@uottawa.ca
Publications
Lee SH, Gibb M, Karunananthan S, Cody M, Tanuseputro P, Kendall C, Bédard D, Collin S, and Kehoe MacLeod K. (2024) Lived experiences of palliative care physicians on the impacts of language and cultural discordance on end-of-life care across Ontario, Canada: A qualitative study using the intersectionality-based policy framework. International Journal for Equity in Health 23:229. doi: 1186/s12939-024-02312-2
Lee SH, Gibb M, Karunananthan S, Cody M, Tanuseputro P, Johnston S, Kendall C, Muray M, Bedard D, Collin S, Kehoe MacLeod K. (2023). Exploring primary care physicians’ experiences of language and cultural discordant care for linguistic minority patients at the end-of-life. International Journal of Qualitative Research. https://doi.org/10.1177/16094069231205202
PRESENTATIONS
Kehoe MacLeod K, Gibb M, Karunananthan S, Cody M, Johnston S, Lee, SH. June 9-11, 2024. Exploring the lived experiences of palliative care physician-patient language and cultural discordance and perceptions of associated impacts on end-of-life care across Ontario. Hospice Palliative Care Ontario 2024. Richmond Hill, Canada. Oral presentation.
